How’s that go again?

It’s funny how quickly we get used to an idea or an event – yes even a Liver Transplant that is less than 8 months old. This has happened to me on two occasions now and both times the other person in the conversation was like WTF!? I never even really stop to think about it anymore, when I talk about my transplant; not in the sense that I think it’s old hat or been there done that – that would be ignorant. It’s more along the lines of I am used to talking about it, sometimes I just blurt it out without thinking if the other person I am talking to knows about it.

I have inflicted this information on two of the new folks in the department, not meaning to, but I assure you, inflicted is the right term here. Never once stopping to think they didn’t already know, assuming in fact that wheels of the Gossip machine had squarely rolled over this fact numerous times with everyone within a 10 mile radius. Well, they didn’t know, and I laid it out there like a big, fat meatball from hell. hehehe…. sorry ’bout that Chief.

I find it interesting because honestly I am not even sure I have fully wrestled the beast to bed myself; and then I go and whip out about something that was some-which-way before my transplant. I am definitely getting used to not being sick again though – which is a good thing. I can tell, when I do get sick (like last weekend), it upsets me more than it used to over the last couple of years – mainly because I have this new liver doing its thing, and part of me isn’t quite sure how this arrangement is going to pan out. It’s not like I have any control over it really. Sure I can do things with diet and exercise – but if it decides it wants out, it gets out – not much I can do.

There are days that I still feel like the chimp there, wondering what the hell is going on and how did I get here.

You may ask yourself
What is that beautiful house?
You may ask yourself
Where does that highway GO to?
You may ask yourself
Am I right?…Am I wrong?
You may say to yourself
MY GOD!…WHAT HAVE I DONE?

Carl’s transplant in the City of Roses

A few weeks ago I ran across another referral to my blog from another, Carl’s Liver Transplant. They live in Portland and are currently spending time at OHSU recovering from his transplant (8/8/2007). The latest update is that he is up and doing well, and I have to say that I am jealous that OHSU has WiFi for it’s patients – I know woopity doo! The last I checked I spend more than a normal amount on my computer, so it’s a big deal to me – and it made a big difference once I was able to get back into a semi-normal routine.

It’s always good to hear a fellow transplantee doing and recovering well, and God willing he will stay that way. Carl also had PSC. It seems, more and more, that I continue to hear about folks who have had or do currently have PSC – which maybe it’s the whole Bear following you around thing (see Lewis Black on this one), but it seems like there are a lot PSC’ers running around. Last I heard this was supposed to be fairly uncommon. I guess it’s the circles I run in.

Posting from Pittsburgh

wifi_logo_0Ha! UPMC now has free public WiFi from the clinic, so I can play around on the internet while waiting here in clinic. Yippee! As if I don’t spend enough time on the computer and/or the internet already they have to go and be enablers. Meh. It doesn’t really bother me. hehehe

I’m just waiting to see the docs now. I had breakfast, got poked and the like – now I get to sit and wait to see the docs and get the results from the CT that I had last Wednesday. Then, just when I get off my butt here I am rewarded with a 3.5 hour drive home. Hooray!

Somebody remind to bring my CD Key for Halo the next time I come – having the disk and no key doesn’t do any good at all.

::Edit ::

So it’s all good news! My artery is still doing well, and the CT shows no further narrowing – and I don’t have to go back to clinic for 4 months!

w00t! w00t!

How do you kick a virus in the ding ding?

This is frustrating. That stinking virus is back again (CMV). I could tell it was coming back too, last weekend just before my Monday donation to the Bradford lab – I was getting that indigestion again, and I have been really run-down again lately too. At first I thought it was because I was working a lot over the past few weeks, and just plum wore my arse out – but no. It’s back. So back on the Valcyte I go, and down 1 mg with my Prograf in the evening. It’s quite a bit like being in the Marine Corps again: up, down, spread em’, together….. up, down, spread em’, together….. on your face now; move!

Alright, alright – it’s not that bad, but you get my point. I have days when I forget what in fact I am supposed to be taking and when – it gets a bit confusing at times. I have everything written down, and just to illustrate it I even created a Medication Schedule List
CMV_detail just so I could keep myself up-to-date.

I finished my CT Scan on last Wednesday, and I’m off to Pittsburgh again tomorrow to get the results and have my regular clinic appt. I’m hoping that the Docs haven’t upgrading me from wait and see to something a bit more progressive like arterial surgery or something. The last I spoke to the docs they thought some additional capillaries would open up to help with blood flow as time went buy, and since all my numbers are still very good; we would just sit and wait.

I hope that is still the case….