What I learned from Michael J. Fox

Whenever I think of Michael J. Fox, two things come to mind. 1) Marty McFly . 2) Tom Wilson’s Question song. One thing that I still have a hard time wrapping my mind around is the fact that he has Parkinson’s disease. This doesn’t strike me as odd since I still have a hard time gathering the mental organization to come to grips with my own liver transplant some days.

This past year has easily been the hardest year of my life to date. I started the year being sick; and having, in fact, been sick for almost 2 years – in and out of the hospital and local emergency room more times than I care to recount. I am ending the year happy, with family and friends and quite well. Easily 180 degrees off from where I started. I would have never guessed hat getting well would be harder than being sick; its as if I have learn how to be well again and train my mind to accept that I am no longer sick.

I stumbled onto this article on the Esquire website last week sometime, and it really hit home. I’m not a big keeping up with the Jones’ type of guy, and I am not into comparing things – especially diseases or medical afflictions; so I’m not going to try and rationalize whether or not Parkinson’s is worse than having had PSC and a Liver Transplant – but what I will say is that the two have overlapping similarities.

Anyone in this sort of situation can find something of value in this short article, it’s worth reading.



How often do you think about it?

I’m going to go ahead an assume you know that I am talking about my Transplant, and to those of you have had one or some other life-changing medical event – how often do you think about it and what happened? I do, quite a lot actually. So to copy a gentlemen by the name Scott Hanselman , I am going to jot down a note everytime I do think about it – and I am going to do it online.

Starting January 1st, I am going to use one of the online social networks that I belong to record and post snippets of what I am doing and what triggered my thought of my transplant. If I am in a location where I can’t post, then I will record it later when I am in a position to do so. I was really intrigued by the idea when I first heard that Scott did it in regards to his diabetes, and the resulting revelation of how often he actually thinks about it on a daily basis. Granted, his condition requires thought a bit more than (I think), as he is attached to an insulin pump 24/7 – but I take meds 5 times daily… So who knows.

Right now I am leaning towards using Jaiku , over Twitter . I just like Jaiku a bit more…. Regardless of which service I use, I have them both set up on my cell phone, google talk, and naturally through my Mac, so I am covered. I can get a post to them from just about anywhere I am; West Coast – East Coast, home – not home, thigh deep in frigid water in Onenota Gorge…. wherever I choose. I am going to start this little endeavor January 1st; yes probably right after New Years, and go for the entire month. It should be interesting.