Here we go again

David Coverdale and Whitesnake put it better than I ever could, but……

Here we go again. A fever presented itself not even two days after I left the hospital which was low enough to warrant a huge fuss, but by morning it had gone up to compell me to come into the VA again. Not that I wanted to mind since I felt fine, but since it was nearly 102 we hopped in the car.

Very frustrating.

Now it’s 3 am, I can’t sleep, and the fever is back up to 102.7. Unfortunately they don’t really know what’s causing the fever and my birthday is just days away, so it looks I’m going to have my 44th in hospital.

Perfect.

 

Two weeks to Vascular stability

After coming back to the VA in an event I have no recollection of, I get to go home today I think. Just shy of my birthday I’m looking at getting out of here and back to trying to get healthy. Oh, did I mention my name is going to show up the UNOS listing as well? Yup, I’m very soon to be listed in this region looking for Liver #2, that is if I’m not listed already. I finished all the requirements and the Liver team has accepted my case – Hostile Abdomen and everything.

This hospital stay saw me in th ICU for more than half the time, and left me with a gaping hole of more than 3 days in my memory, which is a very scary feeling. I got so bad before going to the ER that my confusion was bad enough to affect memory, and by affect I mean erase or prohibit retention. There’s a big long name for this too, though I can’t remember it but Neurocognitive impairment is a major issue in patients with liver disease. The worst part is that there really isn’t anything I can do to recognize symptoms as they onset. This was triggered by bleeding vessels in my stomach and created a whole host of issues. I think in total I received 5 units of blood over the duration of my stay. Some were hung while I was in the ER and more while I was in ICU for the second time. My second ICU visit was precipitated by a fever, infection and a clogged Biliary Drain.

All this aside I’m happy to be heading home.

Two weeks is looking to be long enough for me and I’ll be more than a little glad to be home, sleeping in my own bed, and able to wander my house aimlessly if I so desire and hopefully it’ll be a few weeks at least before I end up back in the clutches of the PVAMC.

Around the Penthouse in 36 hours

I’m home again after spending another night in the ER and 3 days in the Penthouse here in PDX. See they call it the penthouse because it is newly refurbished and the one side, transplant ward, is pretty snazzy. Al hardwood flooring, new individual rooms and all. Still, not my favorite place to hang out. Although 3 stays in 3 weeks is pretty often so I’m getting to know the staff both on the floor and the transport staff to take you places between floors and locations inside the VAMC.

I guess I have what you might call a hostile abdomen. I’ve been opened up enough and cut on enough that there’s quite a lot of scar tissue ensnaring things and not let them be all bouncy and free like normal. So every so often I get all puffy and bound up because they shut and get clogged with food and gas instead of just being able to change shape and let the stuffs go through. Which really hurts. A lot in fact, and sometimes it comes on and I get stuck in this loop of pain killers and bindy pain that is with end and I have to go to the Hospital. This is exactly what happened the last two times I went to the VA the other being that my liver was packing up with bile causing my pain and sending my Bilirubin counts through the roof. It’s all a lot more fun that I make it sound though, really, it’s blast.

But that was last week, and now I’m home again. Friends brings us dinner, and stop to see how I’m doing and it’s nice. Now if I can get back into the swing of things with the bile drain they installed and get back to work that’d be nicer yet.