Thirteen days and a wake up 

Tomorrow marks two weeks after my second liver transplant and I’m back home sitting in my new recliner. It’s been pretty smooth despite it taking a while to get my pain under control. I feel much stronger and more stable, even though things took a little turn to the south yesterday. The plan was to be transferred to a rehabilitation facility to help me get stronger and provide a stop-gap between the hospital and home since we have a lot of stairs. Once we got to the facility though it didn’t take long to decide this was not a good place for me to be. It was more of a low-end nursing home than a rehabilitation center and the vibe was not good, not one of healing and Litsa felt pretty much the same way so we simply took our leave and went about securing the remaining medications that hadn’t been physically supplied to me yet. The docs were a little freaked out that we bailed and tried a bit to get us to come back to the hospital, but having gone up and down the stairs at home already, I feel pretty confident that we did the right thing and mentally being home will be far better than being in the rehab center. Besides, I’ll still be going into the VA twice a week for labs and liver clinic, so it’s ultimately not that different other than the location – and I get to sleep in my own bed.

My mobility is increasing and my pain is manageable, and the incision looks to be healing well even though there’s a couple of spots that need to be packed with gauze. After labs tomorrow I will be checking with my coordinator to have the wound looked at to make sure we’re doing a proper job at changing the bandages and keeping it clean etc.

The other big change is having to check my blood sugar and injection insulin if needed. I’ve only had to insulin up 3 times so far and I’m hoping to not have to do this very much longer since it’s the Prednisone that is making it necessary for me check my blood sugar and I won’t be taking the prednisone forever.

I feel good about my progress and the docs do as well, but that being said I’ll be happy to be 1 more week out, then 2, then 3….

Nearly a week goes by….

After nearly a week post transplant I still feel pretty good if you subtract all of the pain. Today was especially bad for pain. I think I got a little behind my pain meds overnight, but my bowels just aren’t quick to wake up right now, so now I’m back to NPO (nothing by mouth) which is funny since I always thought it was short for “now phuk off”. Realistically I should’ve known it was Latin “nil per os”, but they don’t want me to make things worse, so I guess I can get on board if my morning is less painful than today’s. 

I’ve been up and moving around still, they’re just being pokey to get moving. I’m still doing well and better than the first time, so we’ll just have to see how the next few days go.

Here’s an interesting bit of info;  if you lay on your left side, your bowels are more apt to loosen up and wake up…..

Now I’m going to try and get some rest.

Goodness gracious great balls of fire!

There’s always something that no one talks about, some part of a process that gets tabled – the fact that my nuts are all swollen up is one of those things. Not that I really want to talk about it, but it’s not a lot of fun, and somebody should have said something. So I will just put it here. Hehehe

A lot of bits are still swollen and puffy which means I get to stay on water pills to help “pee off” excess water trapped inside. So I’m peeing like a race horse. Could be worse though, I could be the dude who just came in on LifeFlight.

The rest of the story is following a pretty awesome and good trajectory. Tomorrow I get the incision  coverings removed so that the wound will air out and heal that way. I’m not sure how I feel about that yet, so I’ll leave off with some AC/DC while I work through some pain………

And my balls are always bouncing

My ballroom always full

And everybody comes and comes again

If your name is on the guest list

No one can take you higher

Everybody says I’ve got great balls of fire!

I’ve got big balls

I’ve got big balls

And they’re such big balls

Dirty big balls

Another round of Verices

I just spent nearly another week in the hospital again with a bleed in my throat or Verices bleeds. I should have seen it coming but I was too busy being distracted by nearly not being able to stand up without falling over and high ammonia levels that were altering my state of mind. Grrrreat!

I finally called in the the towel when I started hurking-up blood a few hours hours later. A bit late, so it earned me an ambulance ride to OHSU up on the hill across the bridge from the VA. Let’s go ahead and give that another greeeattt! The best part of ambulance rides? Nothing. Nothing at all, so the fire truck came then the ambulance and within 30 minutes I had hurled blood up all over the front of my Puppet t-shirt with is now in a bio-hazard container since they cut it off of me. That was my Monday.

Now I’m home and I still can’t sleep, but at least I have something to do here, namely blog. So there is a lesson here kiddies, I should have stayed at the hospital Monday.

My coordinator said she told me as much but that I insisted I go home. That’s not how my feeble brain remembers it, but who knows. I knew I was in trouble once I got home and could barely walk, but I guess a part of me was hoping it would just pass. Since I had no real perspective on it it all, it seemed reasonable at the time – now? Not so much. And what is it with IR (interventional radiology) docs? It seems like I have to tell them all 3 or 4 times before they catch on that moving and swapping out my biliary drains is painful enough that I have to be put completely under to do it, but they’re like “nah. We can get r’ done all normal like”. It’s kinda like an episode of Fargo that has no humor in it, just me being in pain.Jackasses.

At least now I’m home again so I can get back to where I was 5 days ago health and strength wise and hopefully soon I will have a new liver so I can start putting all of this behind me again.